Kačenka is a 15-year-old girl with severe disabilities, developmentally at the level of a six-month-old baby. She is completely immobile. Born prematurely at 29 weeks, she suffered from a lack of oxygen in the womb, which caused brain damage diagnosed as cerebral palsy—now identified as the dystonic-dyskinetic form.

Kačenka has multiple associated health issues, including hip subluxation, severe intellectual disability, West syndrome (a form of epilepsy), a very weak immune system, and now also scoliosis. She uses a wheelchair, cannot speak, and cannot feed herself. She is entirely dependent on her family’s care.

Despite these challenges, Kačenka’s family is very active, and her two healthy siblings are passionate about sports. When they’re not busy with training or competitions, their father loves taking them on bike rides. Kačenka herself loves being outside and enjoys rides in nature. However, a standard wheelchair is uncomfortable for longer outings, and the family worries about pressure sores and worsening scoliosis.

How will Advent runners help Kačenka?

We will purchase a special stroller, Josi, so the whole family can enjoy more active time together outdoors.

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