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Nicolas is the hero of this year’s Advenťák Run

17. 04. 2025

Nicolas was born in November 2018. At just seven months old, doctors diagnosed him with a brain tumor that affected the area of the optic nerves. After the first surgery, during which the tumor was partially removed, Nicolas unfortunately lost his vision. The hormonal part of the brain was also impacted, so he now requires multiple daily doses of medication – for hormones, epilepsy, growth, and blood thinning.

Over the years, he has undergone several more complex surgeries, including the insertion of a port and a system to drain cerebrospinal fluid. At the end of 2022, the tumor began to grow again, leading to a new round of treatment that lasted until June 2024. Sadly, the most recent MRI once again showed tumor progression.

Due to his health condition and blindness, Nicolas experiences developmental delays. To support his progress, he regularly attends physiotherapy, occupational therapy, and hippotherapy. Several times a year, he also participates in intensive rehabilitation programs at specialized clinics – both in Prague and Slovakia.

How Will the Advent Runners Help Nicolas?

We’ll help cover the cost of a 14-day stay in Piešťany. These stays are essential for Nicolas – they offer a comprehensive therapy approach, and after each one, he shows remarkable improvement. Not just in physical movement, but also in speech and overall development.